Today the time change caught up with me or something. What a whirlwind day.
Before anything invasive happened, we had to meet the head of the study and sign consent forms. Dr. Bakalov showed up early, about 7:00.
Then the phlebotomists came and took 17 vials of Madison's blood. She had about 4 bites of her breakfast, and then our escort came to take us to her Dexa scan, which was a bit of a test of lying still for Madison. We returned to our room for about 20 minutes and then we were escorted to her first MRI, of her abdomen. The tech was really great- everyone here has been really great. Evfen though the MRI machine was really loud, Madison almost fell asleep wrapped in her heated blanket.
After the MRI, we returned to the room and ordered lunch. The pediatric endocrinologist, who is Madison's attending physician, came to meet us and do a thorough history and physical. She was delightful, her name was Dr. Emirick. Then we had a visit from Dr. Bondy, who thankfully just stopped to say hello and check in. She is Dr. Bakalov's partner in the study, and the nation's top Turner Syndrome researcher. We will have more time to visit with her later in the week.
Then the chaplain stopped by because I told the fellow at admissions that Madison is Catholic. Did you know today is the Feast of St. Eu.....something or other?
The next entry in the parade was the first cardiologist we met, who also did a complete h&p. She listened to Madison's lungs and heart and took four blood pressures, one in each extremity.
Then we were sent for an echocardiogram and EKG. We were supposed to get a bone age x-ray but we forgot so I guess we get to do that tomorrow, along with ultrasounds , occupational therapy and vocational therapy. I hope to know the difference between the two tomorrow.
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