We did our meeting on Friday, and we basically re-hashed what we already knew. She does have ovaries, one has six follicles, and they are working, but they are working as hard as they can and they don't seem to be making enough estrogen to get puberty off to the running start most girls get. Dr. Bondy recommended we wait another 6 months to a year to begin estrogen, and she thinks we can get Madison to 5'1".
We also found out that Madison has an aberrant subclavian artery, and we were told not to give it a second thought.
The cardiologists at the NIH felt that her aortic root was normal, not mildly dilated as we had thought before. This is good news.
Well, no new news is good news!
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